Hollywood film producer Gordon Gray has built his career with films that defy the odds-- like “Invincible,” “Miracle” and “McFarland, USA”-- and now he is hoping to do the same in his real life.
Gray and his wife Kristen have two daughters, who are both battling a rare and fatal degenerative brain disease called Batten Disease. But Gray is determined to save his children, hopefully with the help of some of his celebrity friends.
The California-based family’s world was rocked when the couple noticed 4-year-old Charlotte was having motor skill difficulties. After numerous trips to doctors, they were told she had Late Infantile NCL Batten Disease CLN6, and 2-year-old sister Gwenyth’s diagnosis came immediately after that. The deadly disease usually claims the lives of those affected between the ages of 6 to 12. However, the Gray family is hoping to beat the clock and they created the Charlotte and Gwenyth Foundation with the goal of raising upwards of $10 million for medical research to cure the disease.
“We found out it was rare and fatal and we have been desperately been searching for our cure,” Gray told FOX411. “We’ve been talking with an entire world of doctors that say cures that are available are years away. One doctor said he had a cure but years away. He said prepare your home for blindness with ramps and wheelchairs. We said it wasn’t acceptable.”
The producer has turned to his A-list friends to help get the word out. According to Deadline, stars like Rihanna, Dwayne Johnson, Megan Fox, Mark Wahlberg, and Jessica Biel have shared a video about the girls and their disease on their social media accounts to help spread the word.
“When we first got the news of this, we were reaching out to all of our friends,” Gray recalled. “We knew had a big mountain to climb so we could cure our daughters before we ran out of time. A lot of my friends are in the film business and we called everyone who could help us champion our cause. We diligently met on this and lots of people took time away from their jobs and families. We are certainly grateful.”
Although, the Grays have some Hollywood heavy hitters campaigning for their cause they are still far from their goal are hoping people outside of the celebrity circles donate to their cause.
“We only started this last Tuesday and the snowball is growing but we are not close to what we need to raise. We have managed to get the word out and let the world [know] what Batten Disease is,” Gray said. “Our goal is cure our girls. We’re going to keep fighting. It’s unfortunate that these diseases are underfunded. We need people to donate so we can check the box and eliminate this disease that kills children.”