Life is a race against the clock for Robert Chaiban, who suffers from a rare disease that has trapped his adult mind in a boy's body.
Chaiban, 17, has Barth Syndrome. He was the 17th person in the world diagnosed with the disease that afflicts and eventually kills boys, Australia's Moreland Leader reported on Wednesday.
Growth and motor skills are reduced, the immune system is weakened and muscles around the heart slowly suffocate it.
Last year Chaiban, of Chintin, Australia, survived five heart attacks. (Continue)