About This Video
Title:
Published: Mon, 4 May 2009
Description: Man diagnosed with Lou Gehrig's disease making breakthroughs in medical technology
Automatically Generated Transcript (may not be 100% accurate)
" Former physical fitness guru -- responsible for the life fitness empire and now logging in -- is inspiring people with his own story of perseverance and optimism. On Kenya until has devoted much of his life to health and physical fitness. As the creator and founder of the widely popular my fitness sports equipment I'm surprised himself I'm living healthy active life. For thirty years on he built his fitness empire. But in 2005 the fitness guru was diagnosed with AL less often referred to as Lou Gehrig's disease. Payless is a degenerative disease was destroys the nerve cells that control muscle movement. It ultimately leads to complete paralysis but leap to mind fully intact. There is no cure people usually survive two to five years after its diagnosed. But -- didn't give up instead he teamed with the muscular dystrophy association and now serves as a national vice president for the group. Working specifically with the payless division he's also launched -- qwest foundation dedicated to raising money and awareness for -- LS were searched. As patients lose the physical ability to move and speak analysts can become overwhelming for both patients and their families. So all the began looking for ways to continue to communicate with his family friends and colleagues as his disease progressed. He begin experimenting with specialized speech communications systems. Including one treated by -- box that tracks I movements the I controlled technology allows -- to speak read and control its email. Baseball great Lou -- set the bar high for fighting -- LS with dignity. --"
" And with the help of -- of boxes life changing technology Hogue he is picking up where Garrett left off inspiring people across the country with his desire. To keep going in the face of adversity. And joining us now from Los Angeles is on you -- And we also have got a box is vice president of marketing to and stay with us here in DC we thank you both very much. I'll get -- to start with you I you have very active life. Very big player in the fitness business and Edwards that you were diagnosed with -- LS how is this technology helping you with an ALS patients."
" When I ran online fitness we were known for developing products that help users reached their potential. I was like a preacher spreading the word about the benefits of a new lifestyle. Now with any LSI have the same role. This technology has given me the power of hope. With my eyes I can speak send email watch TV operate the computer and control my environment. I am now the preacher for technology tools that help people live versus preparing to die."
" And -- this is absolutely amazing we love the ability to begin some for odd in others say it kids communicate. How is working you counselor about that's what."
" First just wanted to let you know that about it out of every 1000 people worldwide. Did you speech to communicate in these are people like argue with -- last. But they're also people with stroke with traumatic brain injury like many of the veterans have come back -- from the Middle East -- children with autism Down's syndrome. People's terrible policy in all that's over two million people just the United States. And only about 5% of these people have these devices. It's great that there were -- on this story today. -- because most people realize they exist and most people don't realize that there's funding available to help them pay for them. But basically this this is that device it's our larger IMAX device. -- he's using an attraction aside from the computer and as he said he cannot -- can send email and control the computer. You cannot control -- environment through infrared controls. If somebody's looking for something more portable we have this. Smaller than much device it has all the same capabilities as a larger one just in a smaller package and without the I control. And then for somebody looking for something to take with them on the go we have this. Even smart device it's -- hand held device and you could put it in a purse or take it with you someone with a stroke maybe you. Who's able the law with take a device like that with the."
" But this is amazing technology and you are working so hard to make sure that this message gets out there. And on -- obviously is taken on a new life mission with this I think what else do you want viewers to know about you today."
" Most people diagnosed with ELS right now lose the will to live and elect not to go one of them later because they cannot communicate with the world. It is frustrating because my bunny may not function in the manner that I want it to my mind is sharper than ever. For me negating item is not whether Ryan can breathe on my own it is whether Ryan can communicate. Life is not a one way conversation. If I am able to interact with my family and friends I have a desire to live."
" And -- What is -- you know quickly we just have a little bit of time about finding an insurance and how they can possibly make -- now Medicare will pay for the devices Medicaid."
" Private insurance companies. The VA school districts let's we take care of all the paperwork or -- don't have to do that themselves. How does recommend that people go to our website if they want to learn more it's kind of -- tech. Dot com and they can type in their zip code and find somebody nearby that can help them learn about the products learn about funding."
" I can say we."
" Thank you so much an -- Kenya -- out of Los Angeles we thank you you are inspiring to us on many many levels. That's it for us here in Washington Chris Wallace is up next the Fox News Sunday followed by Glenn -- at 3 PM eastern time. I'm -- in green thank you so much for watching the Fox News Channel real journalism there. And --"
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